It’s not just about measles

More from YLE: Your Local Epidemiologist. And they are still banging on about measles.

I (last) “banged on about it” here.
Great post, that. Just enough rant, balanced nicely with facts and an appropriate amount of sarcasm.

Anyway…

The latest newsletter from YLE has the same title as this post. That’s not coincidence – I copied it.

Because it makes a very good point:

It’s not just about measles. It’s about what measles represents.

As scientists, having worked and studied hard for many years to become experts in our fields, we need to remember that not everyone is like us. Some people studied hard to become mechanics or accountants or teachers. And what seems obvious to us, perhaps only seems obvious to us because of our studying and our expertise. Much like the reasons behind a broken engine will be more obvious to a mechanic, or the meaning of a balance sheet will be more obvious to an accountant. And also teacher… stuff. Probably.

The measles outbreak in the US (and in Europe); the reappearance of a deadly disease that we had completely under control in the developed world is every bit as terrifying as it is completely avoidable.

Measles is a canary in the coal mine. When measles reappears in a country like the U.S., it signals that something has gone seriously wrong. This is a disease we had essentially eliminated—thanks to one of the safest and most effective vaccines in the history of medicine. But the way things are heading, the U.S. is at risk of losing its elimination status this year. This is not just a failure to move forward—it’s the unraveling of decades of progress, representing one of the greatest public health achievements of our era.

It’s a massive failure, and it’s a huge indicator of the high level of mistrust in what is – objectively – clear and obvious, successful science. But as we see regularly in politics, when there is a vacuum of power – or the perception of such – then nefarious parties will take advantage and move in.

It’s because trust has, both due to failures of public health to reach communities and due to well-organized efforts to spread inaccurate information about vaccination, leaving many Americans’ heads spinning as they sort through the noise and figure out who to trust.

We shouldn’t have to keep telling the public just how well vaccines work and just how essential they are: the proof is all there in the data. But maybe we should still have been explaining those data to the public, because in the absence of that sort of communication, others have taken the baton, contorted it, and presented their alternate version to the relay running public.
And as a scientist, it’s both absolutely infuriating that these snake oil salesmen and grifters have peddled their constant lies and unfounded theories around vaccination, and thoroughly depressing that (some) people have looked at the evidence set out before them, and then chosen to believe these venomous blatherskites.

For many in medicine, the resurgence of measles, along with declining rates of routine childhood vaccination, is a concerning sign of what’s to come. If we’re losing ground on measles, we may soon be vulnerable to other vaccine-preventable diseases. Whooping cough cases are already rising. Polio, Hib, or even diphtheria may soon appear in our emergency rooms.

It’s shocking and it’s embarrassing. And YLE’s attempt at a measured response to this upcoming crisis:

…the road back to a world where this isn’t a challenge will not be paved with more facts, fear, or finger-wagging. It will be built, as it always has, through stories and relationships—one respectful, genuine, evidence-based conversation at a time.

is absolutely admirable, but also smacks of someone living in a Walter Mitty world.

Sure, it would be perfect if we had the time, the resources and the ability to talk to concerned, confused parents and families out there and explain to them why they should listen to us and not the other “opinions” on this. But firstly, we don’t have the capacity to do that, and even if we did, in this divided, polarised world, there’s no reason why they would take our word over the nice “doctors” with their brain worms, and their books and supplements to sell. And I say that because if the public could see through the lies and the clever manipulation of the anti-vax lobby, then they would surely have done so already and we wouldn’t be facing this disastrous situation.

This won’t get any better anytime soon.
In fact, without wanting to be pessimistic, I don’t see how it will get any better anytime at all.

What could possibly go wrong?

The measles outbreak in the USA has now killed at least two people, including a 6 year old girl, and has infected at least 430.

430 might not seem like a huge number, but it’s worth remembering that even if infection doesn’t cause death, it can result in deafness, blindness and brain damage, as well as having other serious long-term effects.

And we’ve been through some of the reasons that this outbreak is happening. Indeed, the parents of the little girl that died gave an interview after her death in which they said that they remained strongly anti-vaccination. And while you can argue that that’s their right (sadly, it is), maybe for some context we should add another of the things they said in the same interview:

“The measles wasn’t that bad.”

That ‘s them describing the disease that just killed their daughter.

Absolutely terrifying. Not least given that they have 4 other kids.

Of course, one of the other reasons (other than religion) that measles vaccination has waned is Andrew Wakefield’s long-disproven link between MMR and autism.

A lie can travel half way around the world while the truth is putting on its shoes.

There are now many, many studies refuting Wakefield’s “work” – and it’s a horrible lesson in how incredibly damaging and dangerous spreading falsehoods can be.

It’s absolutely clear that Wakefield’s “study” was – at best – terrible science, and – at worst – completely fraudulent.

So it’s both weird and worrying that The Department of Health and Human Services in the US has decided to launch a study into… er… “the connection between immunisations and autism”, and even weirder and more worrying that [gosh] they’ve chosen a prominent anti-vaxxer to help run it.

David Geier has written several papers on the alleged dangers of vaccines in causing developmental disorders in children, several of them funded by the non-profit Institute of Chronic Illnesses (ICI), Inc.

The CEO of the Institute of Chronic Illnesses (ICI), Inc. is one David Grier.

He’s certainly never medically examined children even though he holds no medical qualification.

Grier and his father have long been grifting while pretending that there’s a link between vaccines and autism. They then tested and “treated” their patients at huge expense to the parents, while raking in money for representing them at (unsuccessful) legal hearings into their childrens’ disorders.

Anyway, he seems like the perfect guy to run an unbiased, objective, non-partisan study into this allegedly contentious and emotive non-issue.

What – I ask again – could possibly go wrong?